William, age six of Lincoln, was diagnosed with medulloblastoma in June of 2018. He had surgery to remove the tumor, along with 30 rounds of radiation and six months of chemo. With treatment complete, William is now approaching his one-year post treatment scans. His future is looking very bright and he’s making leaps and bounds in his recovery, even though there have been some significant obstacles.
Immediately after his tumor removal, William developed posterior fossa syndrome that turned into cerebellar mutism; a central nervous condition in which a person is not able to speak post-surgery. In William’s case, he wasn’t able to speak for about a month. At the end of September 2018, he developed hydrocephalus and was flown to Fargo for emergency surgery to place a VP shunt to drain the excess fluid from his brain.
William has had to relearn everything from walking, talking, and feeding himself. His pituitary gland and thyroid were damaged through the course of radiation, leaving him immunocompromised, requiring medication and in need of a daily growth hormone shot.
After a recent terrifying battle with influenza b, which lead to encephalitis, William is again on the mend and recovering beautifully. He's very excited to be back at school and to see all of his friends. William is so full of love and hope and is an extremely caring child. He is always looking to brighten the day of those around him.
Being away from home and his siblings during the numerous hospitalizations has brought all of their family closer. William's younger siblings have been such an amazing support for him, helping him find his words during his time of cerebellar mutism and holding his hands to help him feel more steady on his feet. They cherish every moment together.
William wants to be an architect when he grows up, which is evident in his love for LEGO’s! William is a very avid builder and will build a project, just to take it down and build it again.
William, keep building on your future, you’re going to be successful!