Glitter, unicorns, bugs, and rainbows! These are a few things that Sky Stevens loved! Sky was diagnosed with DIPG, a tumor in the brain stem, in April of 2015. There is currently no treatment for DIPG so Sky went through six weeks of radiation to reduce the size of the tumor. She then was given Avastin chemo to slow down the growth, but it didn’t work. In the summer of 2015 she attempted a trial in Minnesota. Her family lived at the Ronald McDonald house that entire summer. Ten more rounds of radiation were administered at the end so her family could have more time with her. Sky Stevens passed away October 24, 2017. She is forever 4 ½.
Treatment affected the Stevens family in many ways. Sky has a brother and a sister and the older siblings were forced to spend many weeks away from each other. Many tears were shed because the older siblings had to stay back most of the time. All they wanted was for their little sister to get better. The stress of fighting and knowing what was happening changed the whole family.
Cancer also brought out many strengths in Sky’s family. They learned to SLOW DOWN! Sky loved the little things like rocks, the sun, the moon, ants, and all other bugs! She loved everyone and everything! She loved life!
When Sky’s mom was asked what she misses most about Sky, her response was, “I miss EVERYTHING about her. I miss dancing and singing. I miss going for walks. I miss her grabbing my face and giving me huge kisses or the smell of her as we shared a pillow at night. I miss rocking her to sleep. I miss the messes, bath time, and laying around outside together. I miss her giggle and her beautiful voice. I miss playing make-up and coloring our hair. I miss the glitter fights and the sparkle in her eyes. I miss that part of my soul that is no longer physically here.”
Sky loved unicorns and thanks to come creative family friends, she even got to ride one a couple of times. She NEVER wanted anyone to feel sad. Sky changed people to the core.