Levi of Menoken loves tractors and playing itty bitty baseball. He also has hearing loss and goes to physical and speech therapy because of the effects of chemotherapy on his body.
In 2016, right before his second birthday, Levi’s parents, Tiffany and Joe, found a lump in his abdomen. An ultrasound revealed a tumor that was pushing on his aorta and was completely obstructing his left kidney. They immediately were sent to the University of Minnesota Masonic Children’s Hospital in Minneapolis, which is where he celebrated his second birthday. Levi received five rounds of chemo and had a tumor resection. In the surgery they had to remove his kidney too because the tumor was wrapped around it. After that, he went through high-dose chemo with a stem cell transplant and he had a side effect from the chemo called VOD (veno occlusive disease), which clots blood in his liver. It was one of the worst cases that the doctors had ever seen and Levi had to be intubated and on continuous dialysis. He recovered but had to relearn how to sit up and walk.
After that, Levi went through 20 rounds of proton beam radiation at Mayo. He continues to have high levels of iron in his liver, which requires treatment, and only has one adrenal gland, which can cause low blood sugar levels. Of all that he’s gone through, one of the hardest things for him has been being away from his sisters, Lily and Laila, when he has to be out-of-town for treatment.
This little guy, who will celebrate his sixth birthday during this year’s Brave the Shave Flagship event, is stable and getting stronger all the time! Levi plans to be a fireman like his dad when he grows up.